Universität Wien

400011 SE Methodological challenges in dealing with vulnerable groups in qualitative research (2023W)

Methods seminar

Continuous assessment of course work
ON-SITE

Registration/Deregistration

Note: The time of your registration within the registration period has no effect on the allocation of places (no first come, first served).

Details

max. 15 participants
Language: English

Lecturers

Classes (iCal) - next class is marked with N

Am Freitag, 13.10.2023 beginnt die LV um 9 Uhr.

Friday 13.10. 08:00 - 12:30 Seminarraum 18 Kolingasse 14-16, OG02
Friday 10.11. 09:00 - 17:00 Seminarraum 11 Vernetzungsraum für Vienna Doctoral School of Social Sciences, Kolingasse 14-16, OG01
Friday 01.12. 09:00 - 17:00 Seminarraum 11 Vernetzungsraum für Vienna Doctoral School of Social Sciences, Kolingasse 14-16, OG01

Information

Aims, contents and method of the course

Vulnerability is part of being human. Some persons are extraordinary vulnerable, such as young children, people with disabilities, refugees, people with dementia, or people at the end-of-life, to give only a few examples. Research with vulnerable groups presents certain challenges and requires special attention to the participants and to research methodology and ethics. Qualitative research methods therefore have to take these characteristics into consideration.
In the seminar, we will discuss concepts and theories of vulnerability, of research ethics and of care ethics and their relevance for research with vulnerable groups. Methodologically we will start with photo voice (introduced by Thomas Falkenstein) to better understand: What makes the research participants in my PhD-project extraordinarily vulnerable?
Different methodological approaches and designs as well as experiences will be discussed. Students will be offered extensive opportunities to discuss methodological and ethical issues embedded in their own specific research endeavor. The Lecturers will present examples from their own research practice, particularly with people with dementia and people at the end-of-life.
We will work on and discuss the following questions depending on the interests of the students:
- What are the methodological prerequisites for participation of vulnerable groups in research?
- What are specific challenges for communication with vulnerable groups in research and how can they be encountered?
- How can we as researchers secure informed consent of vulnerable participants?
- What are the relevant ethical issues based on research ethics and care ethics?
- How do we best care for our own vulnerability as researchers and our emotions involved in research?
- How can we provide reflexivity in the research process and the qualitative methods that are applied?

Assessment and permitted materials

The seminar is 'prüfungsimmanent', i.e. the monitoring of the performance of the students is embedded in the seminar.
The participating PhD students will be invited to take photos and exchange their emotions, thoughts, ideas and experiences with other students and with the lecturers. Together, we will read and discuss relevant academic literature. Students will be expected to individually read relevant literature to a specific topic and prepare for discussion in small groups.
Students are expected to attend to all units of the seminar, maximum half a day attendance can be missed. Attendence of unit 1 is compulsory. Students will contribute to discussions, present their own research, discuss the research of the other participants, read the literature provided by the lecturers and prepare a short literature based discussion inputs as well as perform short exercises (e.g. taking photos) between the modules.

Minimum requirements and assessment criteria

Examination topics

The seminar is 'prüfungsimmanent', i.e. the monitoring of the performance of the students is embedded in the seminar.

Reading list

Beauchamp, Tom L., Childress, James F. (2019): Principles of Biomedical Ethics. Oxford University Press
Brown Bené (2015): Daring Greatly. How the Courage to be Vulnerable Transforms the Way We Live, Love, Parent, and Lead. New York: Penguin
Browne Victoria, Danely Jason, Rosenow Doerthe (eds.) (2021): Vulnerability and the Politics of Care. Oxford: Oxford University Press
Clark, David; Ingleton, Christine & Seymour Jane (2000). Support and supervision in palliative care research. Palliative Medicine, 14(5), 441-446. doi: 10.1191/026921600701536156
Conradi, Elisabeth (2001): Take Care. Grundlagen einer Ethik der Achtsamkeit. Campus: Frankfurt am Main
Dewing, Jan (2008): Process consent and research with older persons living with dementia. Research Ethics Review, 4(2), 59-64.
Gastmans, Chris (2013): Dignity-enhancing nursing care: A foundational ethical framework. Nursing Ethics, 20(2), 142-149
Mackenzie Catriona (2019): Feminist innovation in philosophy: Relational autonomy and social justice. Women's Studies International Forum 72 (2019) 144151. doi.org/10.1016/j.wsif.2018.05.003
McKillop, James & Wilkinson, Heather (2004): Make it easy on yourself!: Advice to researchers from someone with dementia on being interviewed. Dementia, 3(2),117-125.
Reitinger, Elisabeth, Pichler, Barbara, Egger, Barbara, Knoll, Bente, Hofleitner, Birgit, Plunger, Petra, Dressel, Gert, Heimerl, Katharina (2018): Mit Menschen mit Demenz forschen ethische Reflexionen einer qualitativen Forschungspraxis zur Mobilität im öffentlichen Raum. FQS Forum Qualitative Sozialforschung, doi: 10.17169/fqs-19.3.3152.
Roth, Wolff-Michael, von Unger, Hella (2018): Current Perspectives on Research Ethics in Qualitative Research. Forum Qualitative Research, 19, No. 3, Art. 33
Schrems, Berta (2020): Vulnerabilität in der Pflege. Was verletzlich macht und Pflegende darüber wissen müssen. Weinheim: Beltz Juventa
Slaughter, Susan; Cole, Dixie, Jennings, Eileen & Reimer, Marlen A. (2007): Consent and assent to participate in research from people with dementia. Nursing Ethics, 14(1), 27-40.
Tronto Joan (2013): Caring democracy: Markets, equality, and justice. NYU Press.
Von Unger, Hella (2021): Ethical Reflexivity as Research Practice. Historical Social Research, 46(2), 186-204. https://doi.org/10.12759/hsr.46.2021.2.186-204

Association in the course directory

Last modified: Mo 09.10.2023 00:05